SUBSET have painted a new piece inspired by seven-year-old Ava Barry’s battle with epilepsy. It’s to raise awareness for the young Corkonian’s GoFundMe page which you can donate to here.
“The concept is influenced by those who ‘hate tags but love street art’. If you think this is bad to look at imagine what it is like to experience it every single day.”
Ava has a rare, life-long form of epilepsy called Dravet Syndrome, which causes prolonged and frequent seizures, movement and balance issues, sleeping difficulties and disruptions of the autonomic nervous system.
For her twenty seizures she suffers from a day she currently takes a medication called Charlottes Web, which is a hemp-derived CBD extract. While this offers some relief, it ultimately doesn’t help her condition.
There is however another option, as there is a medicinal cannabis extract containing THC, which would substantially reduce the quantity of seizures which she experiences. Due to its legal status in Ireland it’s unavailable to here, but it is accessible in Spain, Germany, Italy, Poland, Netherlands, Canada and thirty states in America. This is where you come in.
“Following inaction from government ministers and the HSE, and with The Cannabis for Medicinal Use Regulation Bill that was put before government currently in limbo, Ava’s family have been left with no alternative but to move abroad in an attempt to seek the necessary treatment.”
Click here to help get Ava the treatment she needs and deserves.